Adding on Levothyroxine?

[Superchicken1]

Please don't. I have been on Oz and BHRT for almost 3 years. I started losing clumps of hair earlier this year and we retested my thyroid. I am on the lowest dosage (25mg) of Levo. I did not want to go on this as I thought you were only treated with meds with TSH results over 4. I was at 3.5. She treats over 3. I run full labs every 6 months so she can see exactly were I am at with all of it.

What did you think adding this med would do?

It’s common in bodybuilding/recomp groups, for people to use t3 with an add’l med. I’m not saying whether it should be done or not, just answering your question for why someone would do it.

Also, jic you continue to have symptoms, consider looking into adding in a t3 medication. I feel best with a free t4 around 1, free t3 in the upper 1/4 of the range and a tsh closer to 1. Although my practitioner tends to ignore tsh

 

[yelloeyes]

It’s common in bodybuilding/recomp groups, for people to use t3 with an add’l med. I’m not saying whether it should be done or not, just answering your question for why someone would do it.

Also, jic you continue to have symptoms, consider looking into adding in a t3 medication. I feel best with a free t4 around 1, free t3 in the upper 1/4 of the range and a tsh closer to 1. Although my practitioner tends to ignore tsh

Thank you for this. I will speak to her about it when we run labs again in February.

 

[roxygirl]

I don't think this general statement is true. A lot of people need Levo over 3, and going on a low dose helps. Of course it's not the entire story and everything else should be tested, but if I'm above 3.5ish on TSH, there's a pretty good chance I'm not feeling my best and will talk to my doctor about a dose increase. Similarly, if I'm under 1, there's also a good chance I'm feeling unwell and will talk about a dose decrease. TSH isn't the whole story, but it is helpful, especially in those who have been testing for a long time and know where they feel comfortable.

The problem I’m pointing out here is the lousy TSH which is a flawed test without the thyroid hormones being tested. One can have a TSH of 1 and have hypothyroidism if their Free T4 is below mid range and the Free T3 is below mid range or not in the upper top quarter. A lot can be missed when only testing the TSH and basing medication dosing on the TSH. That’s laziness by mainstream medicine contributes to metabolic syndrome. Test your Free T3.

The TSH isn’t a thyroid hormone nor does it contribute to how one feels. The T3 is the action/ active hormone.

A person not on any thyroid treatment who has suppressed TSH could easily be hyperthyroid (unless they have a pituitary issue). But this situation is totally different and it has been applied to thyroid patients under treatment and used to keep many under-medicated.

Being thyroid less is just at one end of the spectrum of thyroid patients. Many thyroid patients who are on thyroid hormone treatment have some loss of thyroid hormones from their thyroid gland. These people may also need very low TSH in order to get well.

This means that on thyroid treatment, TSH could be anywhere from just inside the top of the lab range right down to near zero. Thyroid treatment might even need to be increased when TSH is suppressed in order to get a therapeutic response i.e. to eradicate a thyroid patient’s symptoms. This does not mean that the patient is hyperthyroid. It simply acknowledges that the person needs more T3 converted from T4 to feel well, i.e. enough of the actual active thyroid hormone.

Ok, so where does that leave us in terms of knowing if a thyroid patient is properly treated?

The answer is “Nowhere” if TSH is the only measure!

TSH tells us very little other than the patient’s pituitary gland is responding correctly as the thyroid medication is increased. Being low in the range on TSH does not mean the patient is correctly treated with the right amount of thyroid medication or even the right type of thyroid medication!

The use of TSH to determine correct treatment level is flawed!​

Doctors and endocrinologists are ultimately going to have to face up to the science and begin to ignore their sacred TSH. It is not the beacon of light onto the correct treatment level at all.

The logic of using TSH comes crashing down!

 

[yelloeyes]

The problem I’m pointing out here is the lousy TSH which is a flawed test without the thyroid hormones being tested. One can have a TSH of 1 and have hypothyroidism if their Free T4 is below mid range and the Free T3 is below mid range or not in the upper top quarter. A lot can be missed when only testing the TSH and basing medication dosing on the TSH. That’s laziness by mainstream medicine contributes to metabolic syndrome. Test your Free T3.

The TSH isn’t a thyroid hormone nor does it contribute to how one feels. The T3 is the action/ active hormone.

A person not on any thyroid treatment who has suppressed TSH could easily be hyperthyroid (unless they have a pituitary issue). But this situation is totally different and it has been applied to thyroid patients under treatment and used to keep many under-medicated.

Being thyroid less is just at one end of the spectrum of thyroid patients. Many thyroid patients who are on thyroid hormone treatment have some loss of thyroid hormones from their thyroid gland. These people may also need very low TSH in order to get well.

This means that on thyroid treatment, TSH could be anywhere from just inside the top of the lab range right down to near zero. Thyroid treatment might even need to be increased when TSH is suppressed in order to get a therapeutic response i.e. to eradicate a thyroid patient’s symptoms. This does not mean that the patient is hyperthyroid. It simply acknowledges that the person needs more T3 converted from T4 to feel well, i.e. enough of the actual active thyroid hormone.

Ok, so where does that leave us in terms of knowing if a thyroid patient is properly treated?

The answer is “Nowhere” if TSH is the only measure!

TSH tells us very little other than the patient’s pituitary gland is responding correctly as the thyroid medication is increased. Being low in the range on TSH does not mean the patient is correctly treated with the right amount of thyroid medication or even the right type of thyroid medication!

The use of TSH to determine correct treatment level is flawed!​

Doctors and endocrinologists are ultimately going to have to face up to the science and begin to ignore their sacred TSH. It is not the beacon of light onto the correct treatment level at all.

The logic of using TSH comes crashing down!

Thank you for your concern. This is all new to me. She did not only test TSH but T3 and T4 and whatever "free" stuff needed to be tested.

 

[roxygirl]

Thank you for your concern. This is all new to me. She did not only test TSH but T3 and T4 and whatever "free" stuff needed to be tested.

You’re welcome. It’s been one of my passions. It’s such a shame that doctors focus on the TSH and not the Free T3. There’s so much to learn to be your best advocate. Years ago I started with Stop The Thyroid Madness website, books and was active in the STTM forums. I then found a lot of great insight reading Paul Robinson’s books, blogs The Thyroid Patients Manual he uses a lot of Tania S Smith’s research. Take care

 

[yelloeyes]

You’re welcome. It’s been one of my passions. It’s such a shame that doctors focus on the TSH and not the Free T3. There’s so much to learn to be your best advocate. Years ago I started with Stop The Thyroid Madness website, books and was active in the STTM forums. I then found a lot of great insight reading Paul Robinson’s books, blogs The Thyroid Patients Manual he uses a lot of Tania S Smith’s research. Take care

I am diving down that rabbit hole now.. I really appreciate the info. Do you mind if I message you?

 

[Superchicken1]

Thank you for this. I will speak to her about it when we run labs again in February.

You’re welcome. A lot of drs aren’t educated on this, endocrinologists tend to actually be the worst. Just sharing in case you get pushback. I don’t really love any of my own local options and use telemedicine. If you’re on Facebook, asking in local groups for drs that test for reverse t3 or who prescribe cytomel will help get you decent recommendations. You could also google stop the thyroid madness and look for recs on their list. There’s this, too. https://npthyroid.com/for-patients/find-healthcare-provider/

Had another thought. A full iron panel including ferritin should be done. Iron deficiency often goes hand in hand with thyroid disorders. Also vits d & b12 are common. My dr likes d close to 100 and b12 in the upper 1/4. Ferritin >100 for thyroid health. All of mine were low and I ended up with 3 iron infusions. Treating it helped stabilize me. Also affects glucose, cholesterol, & lipids. Hope you get everything figured out!

 

[adria37]

That would be a big no using it for weight loss. It can kill you graveyard dead. I don't even want to go into all the reasons but if you read the other responses you can get a bit of an answer. Think negative feedback loop when levels of T3 and T4 decrease below normal the hypothalamus releases thyroid regulating hormone (TRH) telling the pituitary gland to produce thyroid stimulating hormone (TSH) who then tells the thyroid gland to produce more hormones T3 and T4 and raise the blood levels. Once the levels rise the hypothalamus “shuts off” and stops secreting TRH which in turn inhibits the pituitary gland release of TSH. You don't want to mess with this. Google thyroid storm. I have seen this and the person died.

Hope raw oyster eater doesn't see this and decide to try it

 

[Vacation4us]

I have Hashimotos but it was only found after a thyroid ultrasound. I also pay OOP for Synthroid per my endocrinologist recommendation. Levo is Sh$t. $25/ month really is worth the cost.

 

[keangkong]

The problem I’m pointing out here is the lousy TSH which is a flawed test without the thyroid hormones being tested. One can have a TSH of 1 and have hypothyroidism if their Free T4 is below mid range and the Free T3 is below mid range or not in the upper top quarter. A lot can be missed when only testing the TSH and basing medication dosing on the TSH. That’s laziness by mainstream medicine contributes to metabolic syndrome. Test your Free T3.

The TSH isn’t a thyroid hormone nor does it contribute to how one feels. The T3 is the action/ active hormone.

A person not on any thyroid treatment who has suppressed TSH could easily be hyperthyroid (unless they have a pituitary issue). But this situation is totally different and it has been applied to thyroid patients under treatment and used to keep many under-medicated.

Being thyroid less is just at one end of the spectrum of thyroid patients. Many thyroid patients who are on thyroid hormone treatment have some loss of thyroid hormones from their thyroid gland. These people may also need very low TSH in order to get well.

This means that on thyroid treatment, TSH could be anywhere from just inside the top of the lab range right down to near zero. Thyroid treatment might even need to be increased when TSH is suppressed in order to get a therapeutic response i.e. to eradicate a thyroid patient’s symptoms. This does not mean that the patient is hyperthyroid. It simply acknowledges that the person needs more T3 converted from T4 to feel well, i.e. enough of the actual active thyroid hormone.

Ok, so where does that leave us in terms of knowing if a thyroid patient is properly treated?

The answer is “Nowhere” if TSH is the only measure!

TSH tells us very little other than the patient’s pituitary gland is responding correctly as the thyroid medication is increased. Being low in the range on TSH does not mean the patient is correctly treated with the right amount of thyroid medication or even the right type of thyroid medication!

The use of TSH to determine correct treatment level is flawed!​

Doctors and endocrinologists are ultimately going to have to face up to the science and begin to ignore their sacred TSH. It is not the beacon of light onto the correct treatment level at all.

The logic of using TSH comes crashing down!

Why should I believe you instead of my endocrinologist?

 

[adria37]

Why should I believe you instead of my endocrinologist?

I never adjust based on TSH if the TSH is off I add free t4 and t3 then adjust other things can effect levels btw

 

[peptideusername]

good lord some of the shit I see on this forum is terrifying

Don't do it unless you're prescribed and tested frequently. Simple as that.

 

[yelloeyes]

You’re welcome. A lot of drs aren’t educated on this, endocrinologists tend to actually be the worst. Just sharing in case you get pushback. I don’t really love any of my own local options and use telemedicine. If you’re on Facebook, asking in local groups for drs that test for reverse t3 or who prescribe cytomel will help get you decent recommendations. You could also google stop the thyroid madness and look for recs on their list. There’s this, too. https://npthyroid.com/for-patients/find-healthcare-provider/

Had another thought. A full iron panel including ferritin should be done. Iron deficiency often goes hand in hand with thyroid disorders. Also vits d & b12 are common. My dr likes d close to 100 and b12 in the upper 1/4. Ferritin >100 for thyroid health. All of mine were low and I ended up with 3 iron infusions. Treating it helped stabilize me. Also affects glucose, cholesterol, & lipids. Hope you get everything figured out!

I have had all that run but would have to check my numbers again.